A place where I can chronicle my family's journey through cancer. A place where WE can discuss our concerns. A place where WE can inspire each other. A place for hope.
Showing posts with label Linked. Show all posts
Showing posts with label Linked. Show all posts

Friday, September 2, 2011

Happy Anniversary

Wow, it's been a while since i've updated this blog! I must say, i've done an absolutely deplorable job of updating it - and for that, I apologize. Right now, i'm sitting in Kelowna, British Columbia, visiting my cousins and having just returned from a week long trip in Vancouver with my family. Aside from eating like it was nobody's business and laughing as if no one could hear us (boy, were we wrong), my family and I have just been enjoying life. Today also marks the one year anniversary of my mom's transplant - a significant date that has left us sitting back, pondering, and appreciating every breath we take in. It's hard to believe that an entire year has already passed, how many things have occurred since one of the most terrifying, and important, days of our lives. Since that day, so much has happened in our lives. It's almost as if we're completely different people than the fragile, yet indestructable, ones a year ago today. Older, wiser - aware. But not so cautious that life's joys cannot be enjoyed nor appreciated. Looking back and looking at my mother, I feel an overwhelming mixture of emotions. Pride, because I am so proud of how incredibly far my mother has come. Sad, because she had to go through, and still experiences, cancer. Awe, because of the sheer amount of strength and resilience she has shown. And most of all, happiness, that we all have each other, that we are so much stronger and closer than we have ever been.

Though my mother is not yet in remission, she still remains in a consistent and steady decline with her numbers (M-Spike, Freelites) that have left us feeling satisfied and content. As far as we are concerned, as long as the numbers aren't going up, there's no need to fix something that isn't technically broken. In the mean time, she remains on a very low, maintenance dose of Revlimid and regular check ups. While the word "cancer" is always on our minds, it remains so at a distance, allowing us to take pleasure of the simple joys in life. Since then, I have also managed to successfully complete an editorial internship at a men's fashion and lifestyle magazine out in Toronto, called SHARP, that has, quite honestly, changed my life as well. Fashion is something that I am passionate about, and this internship provided me with an invaluable amount of experience and insight that has only fueled my drive even more. You can check out some of my work over at my other blog, the Fashion Relic! In addition, i'm just about to finish up my last semester in school where i'll be obtaining my commerce degree. So, as you can see, a lot of excitement and new beginnings!

Remembering this date led me back to this blogging account, and to my great surprise, showed me that many of you were still coming back and reading my previous posts! Thank you so much, and I can only hope that some of my previous posts were able to help any of you in one way or another. Remember, you are never alone. Your support has inspired me to continue writing from this account, so be sure to check back soon for some updates (especially one involving the magazine's September issue!)

Love and Light,

Lance

Tuesday, August 31, 2010

Ice, Ice, Baby

My mom looks like a big, bald squirrel. Because of all the ice she is chewing (see picture), she looks like she's hoarding a bunch of nuts in her cheeks haha. But she's determined! Her cheeks are cool to the touch when you feel them so that's good, now all we have to do is maintain consistency and be diligent! Other than that, today is a beautiful day. We have a million dollar view!


Sent from my BlackBerry device on the Rogers Wireless Network

Sunday, August 29, 2010

Media Minute


We're in the news again!
Check it out HERE

Wednesday, August 25, 2010

Paws Up!

Little Monsters!
I wanted to update everyone on how PHASE I (more on this later!) of M.A.M. went :)

The competition for two floor tickets to Lady Gaga’s Monster Ball at Rexall Place in Edmonton on August 27, 2010 concluded two days ago.

We are pleased to announce that Kathy Chia of Edmonton is the winner. Congratulations Kathy, you’ve earned it!
We would also like to thank everyone who took part in the competition; thank you for participating and helping us raise funds and awareness for this little-known disease.

In addition, thank you to everyone for joining our campaign of awareness and hope. Now, little monsters and myelomaniacs, we are that much closer to making multiple myeloma a household name, a feat that will undoubtedly aid in the discovery of new treatments and, one day, a CURE! This would have never happened without the sheer, collective power of working together for a better future. So again, thank you!

Monsters Against Myeloma is FAR from being over (as we have some VERY exciting news to share with you all soon!), so please encourage all those you know to join our group and follow suit.

We have members here that come from all over the world! From France to Germany to Iceland to Brazil to the States to right here in Canada! Together, united as one, we are capable of achieving anything. We are capable of what, at times, seems like the impossible; we are capable of DEFEATING.CANCER.

We are still accepting donations for the Multiple Myeloma Research Foundation. Please visit
http://321cure.themmrf.org/site/TR?pg=fund&fr_id=1040&pxfid=9150 or the discussion board of our facebook group for more details.

PAWS UP LITTLE MONSTERS, PAWS UP!

Wednesday, July 21, 2010

GAGA FOR GAGA! MONSTERS AGAINST MYELOMA! WE.ARE.LIVE!!!


Ok so I just realized that I hadn't made this **VERY** important post yet!!! Tsk tsk. But as i'm sure you can tell, our fundraising effort "Monsters Against Myeloma" is officially LIVE!!! (FINALLY). If you don't know already, basically I am giving away a pair of FLOOR.LADY.GAGA tickets to her August 27 show in Edmonton, Alberta to the person/team that is able to raise the most money for the MMRF (Multiple Myeloma Research Foundation). If you would like to compete, please send us an e-mail indicating so at monstersagainstmyeloma@live.com! If you don't want to compete for these wonderful tickets, but would still like to support our campaign of hope, awareness, strength, and gaga-tude, the steps are SUPER easy!

1. Visit out site here
2. Click on the "Make a Donation" button
3. Fill out the necessary fields
4. (optional) Write your name, donation amount, and a message in our guest book!
*note*: Tax-receipts are mailed out to the address indicated in the billing information

Easy peasy right?! I can't tell you how much your support means to us. We appreciate every word, every hug, every dollar, everything. In the end, we are all working towards the same cause (a CURE!), so hopefully M.A.M. will be able to contribute towards that ambitious, but fully possible and realistic, goal. Even if we only manage to raise a penny, I will still consider M.A.M. a raging success. We started off as a small idea to raise a little money for charity, and exploded into this international, global campaign of hope and awareness. It has been through our global brothers and sisters (yes, YOU!), that we have been able to add an extra step in making Multiple Myeloma a household name. Gaga is the biggest superstar on planet Earth right now. Combining her incredibly passionate (and LARGE) fanbase with all us crazy and super duper myelomaniacs(/myelomics/myelomians), we have been able to communicate our message to the farthest corners of the planet. In our facebook group, we have people from Canada, America, Germany, France, Iceland, Italy, and more! Currently, we have about 870 members. THIS MEANS that at LEAST 870 members now know about Multiple Myeloma, a disease I had never even HEARD of pre-diagnosis. I think it is safe to say that you may now check off step 1 of Operation: WORLD DOMINATION. Great Job Little Monsters/Myelomaniacs, great job! Now let's see this to the end and END.CANCER.ONCE.AND.FOR.ALL!


Monday, July 19, 2010

The Big T

So. Today is a big day. It is the first day in a very important and long process that will **hopefully** do the trick in setting my mom into a deep and long remission, until a cure is discovered. Yesterday I went to bed with a mix of emotions... This day has been a long time coming. And you would think 7 months would be plenty time to prepare yourself not only mentally, but also physically and spiritually. But the truth is, no amount of preparation can make you feel "ready" for this kind of procedure. Unless you've gone through it before, you really have no idea what to expect. And even if you have, I doubt the second time is the same as the first. We figure, it is best to just take this thing on a day to day basis. It can get a little overwhelming if you look at the process as a whole. So, baby steps here. Let's hope this thing goes by as fast as treatment has (its already been almost 7 months!!!).

In other news...
This has probably been one of the longest weeks of my life. Let's see:

Thursday (July 8) - Newspaper interview

Friday (July 9) - Front page news, damage control, last day of chemotherapy before transplant, PEREZ HILTON shout-out. HUGE influx of facebook group members!

Saturday (July 10) - Global Shift article

Sunday (July 11) - Unproductive M.A.M. Meeting

Monday (July 12) - Drama/Crisis/BIGTIMEDamageControl. My very first meltdown :) (total gongshow, by the way)

Tuesday (July 13) - Productive M.A.M. Meeting

Wednesday (July 14) - Bone Marrow Biopsy Results (74% down to 16%!!!!)

Thursday (July 15) - A **LOT** of M.A.M. Work

Friday (July 16) - Monsters Against Myeloma is LIVE!

Saturday/Sunday (July 17/18) - Rest

Monday (Today) - Begin Autologous Stem Cell Transplant process.

Shiz. We've definitely been busy. Overall, I think my stress level has probably gone up a couple notches. From the fundraiser to some family issues to the stress of the transplant, it is a miracle I have not been admitted into an institute yet. To tell you the truth, I am absolutely terrified of this transplant coming up. Not so much the procedure itself (although that is undoubtedly a bit daunting), but more so wondering how my mom will take it... All I want to do is protect her, but in these situations, it is QUITE a frequent occurrence to feel powerless... But not hopeless. Because there is ALWAYS hope. Sometimes it feels like a David and Goliath battle. But we all know what the outcome of that situation was right? ;) So, like every other day, I put on my brave face and do everything all over again. Its not easy, but you'd be surprised in the places you are able to draw strength from. We're starting a new chapter now, so wish us luck :) And for my prayer warriors out there, please pray that this thing goes without a hitch. That my mom has a super speedy recovery. And that it will be the last thing needed to set her into a long and lasting remission. Thank you :)

Sent from my BlackBerry device on the Rogers Wireless Network

Monday, July 12, 2010

On Our Own Terms.


Mama bear be gettin' her hair did THIS.INSTANT!

So to prepare for the hair-loss, we figured that it would probably be easier and a LOT less traumatic if we cut my mom's hair before she lost it. Not buzz short, just yet, but in gradual stages to ease her in. So, first stage, she's going from shoulder-length to something similar to the late Heath Ledger's ex-wife, Michelle Williams. Eventually, we will have to cut it all off, but we're taking our time. No need to rush the gun. What I like about this, though, is that she is losing her hair on her OWN terms. Cancer will NOT determine how we live our lives. No one, or noTHING, is forcing her to do this right now except herself. And she is ready to take that step. So bravo mama!

If you haven't read my previous post on hair-loss, please view it here. I will mention this now and many times in the future because I really do think a new attitude must be embraced in regards to this universal symbol of cancer. Repetition is key, and I encourage you to try and inspire others to think differently.

Saturday, July 10, 2010

This Shit is INSANE!!!

HOLY GUACAMOLE!!!!
OK. I just thought I would update everyone on what we've been up to and how the "Monsters Against Myeloma" event has been going :)

The last 24 hours have been BANANAS! Where do I even begin?!
Perhaps the beginning is a good start (obvi).
(I'm running on about 4 hours of sleep here, accompanied by +30C weather. So if I seem a little crazy, it's because I am)

1. Yesterday I did a great interview with the Edmonton Sun, answering questions about the MAM event and basically what we've been up to since the beginning of the year (diagnosis). It was quick, simple, and that was that! I was expecting the article to be a tiny little blurb in some obscure location within the newspaper, but DANG was I wrong. This morning I woke up to a text message saying, "You're on the front page! Congratulations!" My mom would later tell me that she had opened up a fortune cookie the night before foreshadowing a "surprise". Coincidence? (Link to our article HERE)

2. This bit might seem a little confusing, so i'll try to lay it out the best I can. Basically, we have kept my mom's situation on the downlow within my family solely for the reason that my grandparents don't find out. The very last thing we need is for another family member to get sick from stress. Not cool. So because of that, we had only told a couple families within our extended family. I'm not entirely sure WHAT I WAS THINKING when I was doing the interview and sent in the picture for the news article, but it definitely was not one of my brightest moments. So when I read the above mentioned text, I literally sat up straight in my bed and almost screamed. Yeah yeah, drama queen, I know. But I soon found out that the Sun had posted a HUGEEEEE picture of Gaga with a picture of my mom and I on the bottom. Yeah, that's not gonna get any attention AT ALL! You see, there are still people in my family that live in Edmonton who don't know about my mom's situation. I think I was somehow trying to get publicity for the event but at the same time foolishly pretend that my family would never get word of it? Silly SILLY Lance, Tricks are for... (you can complete this sentence). So for about a gooood...5 hours, I was a nervous wreck. I don't think I have been that stressed out since my mom was diagnosed. Yeah, brutes. I even lost my appetite (if you will remember, this also happened to me when mama bear was diagnosed). MY APPETITE! This is coming from a guy that feverishly watched 5 hours straight of Cake Boss...WHILST.EATING.CAKE! (and lots of it) Anyways, long story short, we haven't heard from any family members (yet), so we're hoping they didn't hear the news. My mom freaked out a little this morning, but now she thinks it might turn out to be a blessing in disguise. So... I'll roll with it. As long as she is cool, i'm cool. (PS: Is it weird that I am really really proud that we were featured FRONT PAGE, but also super angry of my incredible stupidity here?)

3. Today was the LAST day that mama bear received chemo before we start this crazy, wacky journey that is the "Autologous Stem Cell Transplant". It almost seems surreal. This abnormal routine has become such a constant fixture in our lives that it almost seems unnatural that we have stopped chemo (hopefully FOREVER AND EVER). Wow, I NEVER thought i'd see the day where I admit stopping chemo seems unnatural. Who would have thought? NOT I!!! Needless to say... Today is a monumental day for us.

4. I found out later on that PEREZ HILTON gave us a shout-out on Twitter, asking all the little monsters to join our cause, personally tweeting GAGA as well! Incase you weren't aware, this guy has a HUGEEEEE following!!! More than 2 MILLION followers on twitter!!! So to get M.A.M. on that kind of platform was BATSHITCRAZY!!!! Within half an hour of his tweet, we had more than 100 members join our group from all over the world! How amazing is that?!?! Little monsters globally uniting for a good cause. It's a beautiful thing. (PS: THANK YOU to whoever let Mr. Hilton aware of our event!!!!!)

5. (This week) I'm JUST getting over the cold (I know, WHO gets sick in the middle of SUMMER?!). It was one of those ones where you start of with a sore throat, then a cough, then fatigue, then faucet nostrils. Thankfully, i'm over that pain in the arse, but I think I might have accidentally gave it to my brother (oops) :( Perfect timing, eh? Well, while we were in treatment today, my mom's white blood cell and neutrophil (which go hand-in-hand usually) count were slightly above the normal range. Upside is, her immune system is working great! Downside, that could have been a sign that her body was creating an immune response to fight off something. NOT.GOOD. We need to get that down a little, which means my brother will probably have to be quarantined for the duration of his cold.

So YEAH! That's pretty much what's been happenin'! Monsters Against Myeloma is kicking into high gear now, so i'll DEFINITELY be updating more on that soon!

Hope everyone is doing well :)

Health, Hope, & Happiness

L

Thursday, May 13, 2010

Vitamins and Supplements and ReallyAnnoyingBloodTests, Oh My!

So, as I posted earlier, we started seeing our nutritionist/alternative practitioner recently. So far so good. The following is a list of recommendations provided for us to keep in mind:

Tests
There are a couple tests that we've decided to perform on my mom to identify certain conditions in her body. Besides the typical CBC work done from our regular blood tests, we've also gone ahead with one called a "Urine Toxic Elements Test", which is used to identify the presence of any toxic metals within the body. Basically, you're hooked up to an IV (pretty much my mom's BFF at this point) that contains a liquid that draws out the metals in your body and helps excrete it into your urine (which is collected and shipped off to the US for analysis). Simply put, you're given what is called a "chelation" agent. It was important for us to do this during our week off because, as mentioned, it draws out metals from your body. That combined with chemotherapy would be too much on the body. I'll keep you posted on our results, which take about 2-3 weeks.

The other tests that were recommended to us included a "Comprehensive Parasitology" (identifies organism imbalances within the digestive tract) as well as a "Comprehensive Bio-Terrain Test" (determines the balance between the major regulatory systems in your body, allowing for a more precise dietary and supplemental recommendation). Unfortunately, we couldn't go through with them, and won't be able to until we have a good long break from chemo. Chemo basically effs up the results and skews the information you receive from these tests, soo we'll have to put these on the back-burner until ... WE ARE IN REMISSION! (*positive vibes/spirit fingers-motion*)

Diet
Basically, we just have to continue what we've already been doing. That is, eliminating flour products and gluten-containing grains (i.e. wheat, rye, oats, barley) as much as possible, eliminating sugar/sweeteners and refined foods, and cutting down on our red meat consumption. In terms of what we are to add to our diet, more organic and free-range foods, as well as raw fruits and vegetables (blended, juiced, or chopped up). Oh, and of course, PLENTYYYYYY of water (even if it forces you to be in constant close vicinity of a washroom.....which it does). In addition, cooking our food with olive or flax oils, or if you want to get all fancy pantsy, coconut butter, butter (ok, not so fancy) or clarified butter (ghee).

We were also advised to purchase some sort of "green" drink (ex. wheat grass or barley grass) or powdered green drink (ex. Pure Synergy, Berry Greens, Greens Rx). We bought the Berry Greens and Greens Rx and are very pleased with it. It seems to keep my mom's energy levels up and, more importantly, consistent. No peaks and valleys, my friends! I know fatigue is a huge issue with cancer patients, so it's something that we needed to address.

Vitamins/Supplements
Wobenzyme PS: enhances natural killer cell activity and immune communication. It acts as an antiinflammatory and stimulates your immune cells to focus in on cancer cells.

Avemar: enhances natural killer cell activity while reducing cancer cell DNA synthesis and repair.

A.H.C.C: improves immune strength during chemotherapy. It is derived from a type of Japanese mushroom.

Vitamin D: 8000 I.U./day(!!!) There is a TON of information on vitamin D, specifically D3. My most-recent "WW" post had some information about it.

Salvestrol Platinum: related to resveratrol, they promote cancer cell death (apoptosis) via activation of CYP1B1.

Chemo Support Formula: keeps the liver, kidneys, and nervous system strong during chemotherapy.

Therapies
Vitamin B12 (methylcobalamin): promotes normal cell division and growth while supporting nerve health. Specifically, these would be used to help with my mom's peripheral neuropathy. She's just starting to feel the tingling/numbness associated with the condition, so we thought it best to catch it early before any kind of permanent damage was done.

Modified High Myer's IV Cocktail: ensures basic nutrient needs are met. This is what we were receiving when I posted earlier today from the nutritionist's office! It was very interesting, actually. Basically, it's this little IV bag (once again, BFF...) that you're hooked up to that gives you, as the name suggests, a "cocktail" of different vitamins and minerals to replenish what your body is lacking. The nurse told us to note how much fluid was in the bag if my mom started to taste or smell something "vitamin-ey". Right away, my mom reported it within a couple seconds of administering the fluids. Initially, I thought that this would be a bad thing. But then the nurse told us that was an excellent sign as that meant that my mom's vitamin B levels were up to par and doing well! Yeeeeuh! Also something to note, after receiving the cocktail today, my mom felt pretty much energized throughout the whole day right up until around 1am. Hopefully that is the cocktail at work. HOPEFULLY. One other thing to note is that it is a water-soluble solution. From what I gathered, that means that your body takes what it needs from the cocktail and then excretes the rest through your urine within about 24 hours. This is important because it means we don't have to wait until our week off to receive it. If we administer the solution a day before chemo, that should give my mom's body ample time to absorb what it needs and get rid of what it doesn't so as to not possibly interfere with the other drugs. Correct me if i'm wrong?

Far Infrared Sauna: enhances tissue detoxification and elevates core body temperature which is known to slow cancer cell growth.

PHEW! that was a.LOT to get through! Now, out of that ginormous list, my mom decided that, for now, she would only pursue the basic dietary "rules", vitamin D (new dosage), B12 shots, and the Myer's cocktail. We were given this list of recommendations at the same time as when we were taking Revlimid for the first time. To be safe, we thought we would avoid all the other stuff (as most of them deal directly with the cancer and chemo) so as to not skew the results on how effective the Revlimid was. So, that's pretty much where we're at. I know it's a lot of information, but hopefully it helps you in some shape or form. Most importantly, our nutritionist is helping us plan for how best to recover from the transplant as quickly and safely as possible.



Tuesday, May 11, 2010

Wellness Wednesdays




#12 Avoid foods that are pretending to be something they are not. Imitation butter – aka margarine – is the classic example. To make something like nonfat cream cheese that contains neither cream nor cheese requires an extreme degree of processing; such products should be labeled as imitations and avoided. The same rule applies to soy-based mock meats, artificial sweeteners, and fake fats and starches. Source: Food Rules by Michael Pollan

#13 Omega-3s. “Organic” meats or eggs contain few or no pesticides, hormones, and antibiotics, but they are not necessarily balanced in omega-3s. If the animals have simply been fed organic corn and soy but are not grass fed or free range, their meat and eggs remain excessively rich in proinflammatory omega-6s and deficient in omega-3s. To be sure that you’re eating products of the same quality as what your grandparents ate, look for labels that specify “grass fed” or “rich in omega-3s”. Source: Anti-Cancer: A New Way of Life by David Servan-Schreiber

#14 Sugar. Recently, the team at the University of Sydney that introduced the concept of “glycemic index” pointed out a natural substitute for white sugar with a very low glycemic index: Agave nectar. An extract from cactus sap (used to make tequila), it tastes delicious, comparable to a light honey. It is three times sweeter than white sugar, but its glycemic index is four to five times lower than that of honey. (The glycemic index is considered “low” if it is under 55; glucose has an index of 100. The glycemic index of agave nectar is between 15 and 21, and between 60 and 80 for most kinds of honey.) Agave nectar can be used instead of sugar or the usual syrups to sweeten tea, coffee, fruits, and desserts. Xylitol, a birch-bark extract, is highly sweetening but contains only one third of the calories of other sugars. It does not cause blood sugar or insulin levels to rise, and it is the only sugar that has been linked to a decrease in the risk of dental cavities. Source: Anti-Cancer: A New Way of Life by David Servan-Schreiber

#15 Vitamin D. Skin cells produce vitamin D when they are exposed directly to the sun. People who live away from the equator produce less vitamin D and can sometimes be deficient. It has recently been shown that a significant supply of vitamin D reduces considerably the risk of several cancers (by more than 75% with a daily intake of 1000 international units (IUs) of the 25-hydroxyvitamin D form), in a Creighton University study published in 2007. In a Canadian pilot study of fifteen patients with prostate cancer, researchers reported on the effects of taking just 2000 IUs of vitamin D3 daily over a median of eight months (up to 65 months for one of the patients). Fourteen of them saw a slowing of progression of their PSA levels (the most common marker of prostate cancer, used to follow its growth over time). And these levels actually dropped significantly in nine of the patients compared to their levels at the start of treatment.

Other studies published recently have shown positive effects of vitamin D3 on breast cancer, non-small-cell lung cancer, colon cancer, and prostate cancer. Many researchers now believe that vitamin D3 contributes to slowing down all forms of cancer, at least in the early stages. Moreover, we no know that vitamin D3 very likely protects us from colds and flu and contributes to maintaining a positive mental outlook – a precious antidote to lower energy levels during the dark, cold months of winter.

The Canadian Cancer Association now recommends a daily intake of 1000 IUs of vitamin D during the fall and winter months (because of Canada’s limited access to sunlight) and all year long to people over sixty-five years of age and those who get very limited exposure to the sun because of lifestyle or religious reasons. Take care: Vitamin D2, or ergocalciferol, should be avoided, since some specialists have reported potential toxicity from hypercalcemia.

Remember that twenty minutes of noonday sun exposure to the entire body provides between 8000 and 10000 IUs (but beware of the risk of overexposure, which is clearly related to skin cancer).

The foods that contain the most vitamin D are cod liver oil (1,460 IUs in a tablespoon), salmon (360 IUs in 100 grams), mackerel (345 IUs in 100 grams), sardines (270 IUs in 100 grams), and eel (200 IUs in 100 grams). Milk enriched with vitamin D contains only 98 IUs per glass, an egg 25 IUs, and calf liver 20 IUs per 100 grams.

Though rare, there are possible risks associated with excessive intake of vitamin D3. Kidney stones may develop, due to excessive calcium in the urine, and hypercalceima (excessive levels of calcium in the bloodstream) may develop, which, in some very rare cases, can be lethal to people with cancer. I therefore recommend that you measure blood levels of vitamin D3 and calcium levels in blood and urine under your doctor’s supervision before you begin supplements and roughly every three months subsequently. Source: Anti-Cancer: A New Way of Life by David Servan-Schreiber

Sorry. Bit of a doozy, eh? If you want to know more about the importance of vitamin D (and its connection with Multiple Myeloma), check out Margaret's Health Blog! It's Super!

#16 Meal Replacement Bars: Nutrition on the go. I thought this would be a relevant post as many of us are constantly busy with treatments and other activities.

Meal Replacement Bars: Formulated to be a meal substitute, these bars typically contain 300 to 400 calories. These are not snacks. Check out the calorie content and the nutrient density of a bar. When looking for a meal replacement, set the bar high. Look for those that contain whole food ingredients such as whole grains, nuts, seeds, and fruit – preferably organic. If ingredient names are unpronounceable or their true identities are unknown, take a pass on that product. To be of nutritional benefit, a bar should contain at least 5g of protein and at least 3g of fibre. Always watch the amount of saturated fat, sodium, and sugar a bar contains. This is especially important for those with health concerns such as high blood pressure or diabetes. High sugar content can rapidly elevate blood glucose in diabetics. However, bars that contain protein and fibre allow blood glucose to rise gradually and safely. Avoid bars that contain as much saturated fat and sugar as a candy bar. Meal replacement bars, when eaten occasionally, are a convenient, portable way to ingest an optimal amount of nutrients rather than skip a meal or resort to fast foods.

Energy Bars: Also known as sports bars, energy bars were created to improve the endurance of athletes, such as marathon runners, cyclists, or cross-country skiers. Many of these bars provide a big hit of carbohydrates. Bars that contain extra carbohydrates may benefit an endurance athlete but aren’t necessary for the average person. Some energy bars are high in carbs; others are high in protein. Strength training demands extra protein; tuck a bar in your gym bag for a post-workout snack. Look for bars that contain less than 200 calories; the goal is to boost nutrient intake and provide a balanced source of energy, not replace a meal. Avoid bars that list high-fructose corn syrup on the ingredient list.

Source: May 2010 Issue of Alive Magazine. Article by Ellen Niemer


True Life


Mtv's "True Life" started off a brand new season with an episode that I am sure all of us can relate to. For those of you who are unfamiliar with this show, it is basically a documentary series that follows the lives of people, from schizophrenics to shopaholics to embarrassing parents. It is a fascinating and wonderful show. The premiere episode of the new season is titled "True Life: I Need A Transplant". I highly recommend you give it a watch. Although, an advanced warning if I may, don't watch it in front of anyone you want to impress, unless you'd like to do so with puffy eyes and a drooling nostril. It's very emotional (or maybe I am just an emotional person). Not gonna lie... I am
terrified of the transplant procedure we are planning to go through this summer. My feelings towards it are a mixture of pure dread and anticipation, because I know it will do my mom wonders. In the long run, it is a small price to pay if it will mean a remission that lasts 1, 2, 5, 10, 15, 20 years. Just gotta be strong.

Provided is a link to the show you can watch online. Note, this is the Canadian website. If you can't access it, try going to mtv.com, then shows, and search True Life. Should be there. Enjoy!

Friday, April 23, 2010

To Die or Not to Die

Recently, there has been an issue that I have debated writing about just because of how controversial it is. One day I’ll write a couple paragraphs on it, the next I’ll scrap everything. It’s a subject that I feel leaves many of us divided in our opinions towards the matter. Lately, however, in light of some current events, I’ve decided to go ahead with it. Not only because I use this blog as a place to voice my thoughts and opinions, but also because I do believe this issue is a relevant one that needs to be addressed. Besides, controversy can be good. It’s an opportunity for us all to think and speak. In addition, this subject has been at the back of my mind for a couple weeks like a secret brain ninja judo-chopping my meninges, fighting to be released! Not so much fun, as you can imagine…

The last issue of Maclean’s magazine covered an interesting topic that led to its purchase for further reading. Basically, it discussed the debate between those against and those for assisted suicide. See what I mean? The article personified the issue through its profile of a lovely little lady by the name of Bernice Packford from Victoria, BC. It read, “She’s happy. She’s healthy. She wants to die. Should we help her?” Interesting…

First, some important information. Although they are often associated with each other, it’s probably important, in matters like these, to distinguish the difference between assisted suicide and euthanasia (because there is a big difference). According to the article, “assisted suicide involves the passive participation of a medical professional in an individual’s decision to take their own life. This may take the form of dispensing a lethal pill or providing advice. In either case, it’s the patient who ultimately takes the decisive action. Euthanasia, in contrast, involves a positive action on the part of a doctor to end a life at that person’s request – by administering the fatal dose, for example.” So basically, the difference between the two is based on who takes the primary action in the ending of a life. It’s a little ironic though. If euthanasia were to be put into effect, those who were committed to saving lives would also now be committed to ending lives. God, is that you?! The magazine expresses these sentiments as well. “Of the two options, euthanasia is easily the most disturbing. Having taken an oath to ‘do no harm,’ it is intrinsically wrong for a medical professional to play an active role in the death of a patient”.

Now, this is where Bernice comes into play. Her argument, as you may have guessed, is “pro” in the death with dignity debate. She states, “I am in good health. I’m not suffering from an illness that will be eventually fatal”… “I’m tired and I do suffer from congestive heart failure [which robs her of energy and requires her to use a walker]. I can have a stroke. I’ve had a stroke, and I recovered from that. I’m facing imminent sickness or a stroke, which will leave me conscious and helpless. And that thought fills me with horror.” Essentially, what Bernice is fighting for is the right to die on her own terms, to die with dignity. This would allow her to have her family with her on the “big” day and ultimately, die in peace. Now, this is the part where I am often left sitting on the fence. No one can blame this woman for wanting to go out with dignity. It’s not so much Bernice that I am opposed to, in fact she seems like a very lovely woman and a strong contributor to society. Instead, it is the act and the justification of suicide that this movement advocates that I am against. Regardless of what I think, however, it’s important to acknowledge that these are very muddy waters we tread. If legislation in support of assisted suicide were to pass, where would the line be drawn? I can understand the justification from those in considerable amounts of pain or vegetative states, but for someone in relatively good health to so readily ask for death? As others have mentioned, what about those who are depressed and in other altered states of mind? If such legislation were to pass, it would send a message out to people, out to our kids, that suicide would be a justifiable action to pursue. I’m sure many of you have seen headlines boldly displaying the prevalence of bullying-related suicides? What about those kids? I can only IMAGINE how many ways such a legislation could go wrong, or God forbid, abused. Despite these reasons, on a more personal note, I feel like this whole debate screams “ungrateful”. Ultimately… I feel like this issue is a huge slap in the face. It is a cold, hard, and cruel smack to everyone out there fighting to save their lives and the lives of their loved ones. It is offensive to me because I know people out there in the world and people in my life that are fighting WITH EVERY OUNCE OF THEIR BEING to stay alive, hoping to live just another day. And in the meantime, others who are perfectly healthy and, really, have nothing to complain about, are out there trying to fight for their right to end the very thing we are working so hard to save. Talk about a kick when you’re down. It’s like…someone working years and years to build something beautiful only to have it destroyed by someone who won’t have a second thought about it. Bad example, I know.

I’ve talked to others to get their opinions on the issue, and was actually quite surprised to hear from many that they believed suicide was a justifiable “way out” – excluding those in considerable amounts of pain and vegetative states. I’m sorry but I am STILL having a hard time grasping that concept. Yes, I understand that many people feel like there is no way out, but I truly do not believe that suicide is ever the option! Would you consider it such a justifiable action if it were your family member or friend in the position? No, you wouldn’t ever want them to give up.

Now, I want to be clear on something before anyone gets too worked up. When people decide to go into hospice, to me, that is not giving up. In fact, it is the complete opposite. I think all cancer patients are true fighters. Ever since we were diagnosed, I have never met more courageous, spirited, and supportive people than those affected by this disease. When a person makes the decision to go into hospice, I think that, in and of itself, is a tremendous show of strength and bravery. It is not giving up, it is a shift in focus. These brave men and women have instead decided to fight for quality of life. It must be an extremely hard decision to make and one that I don’t think I would ever have enough courage to muster up. Kudos to them.

On the magazine’s site, another person brought up a good point:

However, a large number of people that do commit suicide would probably regret having done so. How do we know that? Because there are a large number or people who have been prevented from committing suicide, most of whom regret their suicide attempt. Public policy must assume that people who want to kill themselves (I suppose we can make an exception for the terminally ill) are irrational, and don’t really want to do so. Why? Because it is usually true, and, frankly, if somebody really and truly wants to die, they can easily succeed. What Bernice Packford wants is for somebody else to take responsibility for her life. She wants to institutionalize and bureaucratize suicide. One might reason that she would feel guilty if she killed herself on her own. She damn well should, because suicide is a profoundly painful experience for everybody who cares for her. Far more so than death, I should add, which has no assocations of guilt. Suicide is illegal, at least for healthy individuals. But it is also unenforceable if somebody really wants to go through with it. That is the way it should be. Those that truly want to die, can easily succeed. At the same time our public policy response must be to try with every fibre of our being to keep people alive.

When it really comes down to it… I just feel like we are taking too many things for granted. Life is precious, life is valuable. It pisses me off that, as my mom (and millions like her) fights so very hard for her life (to the point of sheer exhaustion), there are those out there that would try to pass a law to end lives. It’s a deeply complicated and emotional issue. I know some of you, perhaps many of you, will get upset over this and I can respect that. This is just me being completely honest and sincere to myself and those reading this blog. I feel like I’m ranting now, so I’ll let it soak.

Provided is a link of the article featured in Maclean’s: Bernice

*UPDATE*

Ugh! I was reading the Globe and Mail today and found an article about a Minnesota man by the name of William Melchert-Dinkel, 47, who was charged for "aiding" in the suicides of two people via online chat rooms - apparently for the "thrill of the chase". What is wrong with people?! According to Melchert-Dinkel, he had entered into 10 or 11 suicide pacts in the past. Most recently, he had convinced an Ottawa university student, Nadia Kajouji (who, might I add, was battling DEPRESSION), to jump into the frozen Rideau River in March of 2008.

Now, when I mentioned previously about how legislation in support of assisted suicide could go wrong or be abused, this is exactly that kind of situation. How does one truly differentiate between assisted suicide and perhaps a more devious intent or ensure that it does not conflict/contradict with other existing laws? In regards to this case, conviction is unclear because of "jurisdiction, its online nature, and the fact that the Minnesota law against aiding in a suicide (which applies to anyone who 'advises, encourages, or assists another in taking the other's own life') is also viewed as untested, and vulnerable to a challenge under U.S. First Amendment free-speech laws."

ARE YOU SERIOUS???

You can read the full article here

Monday, April 12, 2010

We're Making Progress!

For those of you who don't actively follow the ACOR Myeloma Listserv, a member just recently posted an article in regards to the progress that treatment has made over the last ten years.

The article states that, about ten years ago, the median survival of myeloma patients was about three years. THREE!!! Scary stuff... However, with the sheer speed that research and treatment have made, that number has increased to about ten years. That's more than a 300% increase! This just goes to show that one can never place too much importance on a prognosis (I think they're ridiculous) because of how fast medicine is evolving! It's a great number, but still not good enough. We have to work together in fighting this beast off once and for all! The article also highlights the importance of clinical research, stating that this improvement in patient survival would not have been possible without them.

Here's the link if you want to read further!

Sunday, April 4, 2010

Believe


So, did any of you catch the 20/20 episode that aired a couple nights ago? Wasn’t it FASCINATING!? It was about miracles, and just so happened to be right on time for Easter weekend! One of the profiles featured on the episode involved a woman named Audrey Tugochi, a retired school teacher who was diagnosed with a rare form of cancer called Liposarcoma, a cancer that arises in the fat cells of our body. Upon diagnosis, she was instructed to start chemotherapy but refused and instead, opted to pray to Father Damien De Veuster.

This is probably an appropriate time for a little history lesson. Father Damien De Veuster was a Belgian priest known for his work with leprosy patients in Kalaupapa of Molokai Island in Hawaii. It was an island where lepers were basically shipped and banned to for fear of contamination. Father Damien was the first to go to this island voluntarily, knowing full well that he would contract leprosy. While experimenting on himself for possible cures, Father Damien died of the disease in Molokai in 1889.

Now, back to Ms. Tugochi. Without any chemotherapy or other treatment, except that of faith, Audrey’s cancer receded and completely disappeared. Umm…WHAT?! Turns out I wasn’t suffering from premature hearing deficiencies because I had heard that correctly. Disappeared. Amazing. The Vatican later concluded that this was an official miracle, leading to the canonization of Father Damien, or rather, Saint Damien. Now, this is by NO means, an easy task. There are very, very strict and rigorous guidelines that the Vatican undergoes before officially labeling an event as an official “miracle” and canonizing an individual.

For an event to be recognized as an official miracle, a team of doctors and experts (not necessarily catholic, but the most qualified) chosen by the Vatican are hired to examine cases deemed as miracles. In addition to this, the Vatican also enlists what is called an “advocatus diaboli”, or in popular terms, a Devil’s Advocate, to present reasonable facts against the case and promote the “truth”, whatever that may be. Or, as Michael Shermer, head of the American Skeptics Society states, be “Mr.Skeptic”. The criteria that these individuals use for a confirmed and official miracle state that the miracle be: Lasting, Perfect, Instantaneous, and Scientifically Inexplicable. In order for an individual to be canonized as a saint, there must be proof of the intercession of at least two miracles by said individual. Interestingly enough, canonization does not make someone a saint. Rather, it is only a declaration that the person is a saint and was a saint even before canonization. So basically, it is a process of recognition, not certification.

I’m not a hardcore follower or anything, but I do believe and have faith in Christianity. Whether or not you believe in the same higher power as myself, I do think that believing and having faith in something is important. For many of us, it gives us something that sometimes science and medicine cannot. Hope. The closing segment of the episode put it nicely. and yet the overwhelming belief of miracles persist. Perhaps it is only human to yearn for something more powerful, something to save us or the people we love in our times of need. For those who do know, these modern miracles are part of faith that has sustained them”.

Moral of the story? Well, as Journey once wisely sang, "Don't stop believing. Hold on to that feeling". Choose something to believe in and don't ever let go! Believe that you'll get better. Believe that they'll find a cure. Believe that you'll see the day your grandkids are born. Whatever it is, just believe.

The following are links to the 20/20 episode and a newspaper article that featured Audrey Tugochi’s miraculous recovery.

Miracle

Audrey Tugochi

Happy Easter everyone :)


**UPDATE**

I was reading the paper today while we were in for treatment and just so happened to discover that the National Post also did a piece similar to the one featured on 20/20. Ch-Ch-Check It Out!